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Showing posts with the label #disease

Lacy Underwear isn't ALWAYS a Good Idea --SAID WHAT???

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Hello everyone! Today in The Locker, I want to talk a little bit about what touches our skin. Specifically, what touches my skin. My autoimmune diseases have affected my nerves, which in turn can aggravate my skin. Once again, I dove into research. From Healthline.Com "Rheumatoid patients can develop skin disorders. According to the University of Iowa Hospitals & Clinics (UIHC), this happens because rheumatoid conditions like RA are autoimmune diseases. UIHC notes that the same kind of immune system problems that cause joint inflammation, swelling, and pain can also affect your skin. When this happens, RA patients may develop lesions or rashes on the skin, reflecting immunological dysfunctions." I've noticed the usual sunspots, age spots, freckles, etc that have slowly increased over time. With my fair complexion, I should've heeded the warnings about sunscreen. So, now, I'm gonna preach the benefits of sunscreen and shade. You don't want skin cancer...

BookRhythm It's a FRENZY!

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cONTEST ENDED... Welcome to The Locker!!!! I'm excited this month to be part of BookRhythm's March FLASH Frenzy.  To enter all you need to do is comment below with your favorite character from one of my books. Haven't read any of my books? I LOVE to meet new readers.  Check my page on Goodreads, get a little excerpt of any or all of your choosing! What do you do in your spare time?- I collect cookbooks, I love to cook and can foods, keep the birdfeeders full, try to keep my Netflix addiction under control, think about new tattoos, and keep up with my crazy family. I used to exercise and participate in triathlons, but, about 3 years ago I began getting sick. The doctors knew I had auto-immune diseases, but, it took a very long time and so many doctors to determine I have rheumatoid arthritis and Sjogrens Syndrome. Now, I do yoga at least twice a week and am adapting my life. I’m not ready to let diseases dictate my life, it’s about getting ba...

RA and Pruritis AKA - FREAKING ITCHING

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Hello everyone... Living with autoimmune disease is a challenge.  I have RA and Sjogrens. The maddening part is sometimes the day brings a new challenge I didn't expect. Take Saturday for example, my body went into full-on itching powder craziness. I have a high allergy level to trees, weeds, grass, some pet danders, mold, well...you get the picture. Because the same processes that attack allergens also wreaks havoc with the auto-immune system. I also have neuropathy and a loss of sensation. Which I realize is an odd combination when I have the horrible itching, but, my skin lacks sensation. Huh? The itching is like an inside out hives, imagine deep under the skin all of a sudden, a thousand chiggers invaded. You try and try scratching to get to the source. but, you can't. Well, I sat in a tub of epsom salt and warm water trying to soothe achy tired muscles and joints. Then, I began scratching the insatiable itch. Here's the result, and I didn't know this w...

Making a Difference - Eradicate MS

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My name is Brian Jones. I am an avid cyclist riding to rid the world of Multiple Sclerosis. Short and sweet this week. During this season of love and celebration, please give the gift of HOPE for those living with MS. Join the fight to find a cure by supporting me in my 10 th BikeMS. Please visit my page at http://main.nationalmssociety.org/goto/Brian2015 to make a donation. May you all have a joyous and very Merry Christmas.  

Depression Fecking Sucks, Not Just Hurts

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I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Thank you for listening, periodically, I will have a new installment chronicling my journey- DEPRESSION CAN BE PAINFUL Although this time of year brings a warm glow to the core of most folks, we have a subset of people struggling to even wake up on Christmas Day. Depression/Anxiety/Bi-Polar/Fibromyalgia/MS/Sjogrens/Lupus/too many to list… Some seek help, some give up, some learn to live with it. It's not an easy life, but, it's one worth living. Which is the hardest part of all to remember, especially when you're in physical and mental pain. I had some of that pain yesterday.... I made the horrible mistake of miscalculating my Lyrica prescription  before it ran out. Taking the last pill on Monday morning, I called the script in to my amazing Kroger pharmacy. I arrived a...

Making a Difference - Eradicate MS

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I try to host a health related post each week in The Locker. I like to share my experiences in the hopes of helping someone else. I've decided to make a little turn and have a guest host for the next few weeks. My friend Brian is a beast. He cycles more miles in a year than I probably drive in my car. He has a passion for health, and shares an equal passion to eradicate MS. Please be kind to Brian and give him a warm welcome. Hugs-     My name is Brian Jones.   I am an avid cyclist riding to rid the world of Multiple Sclerosis.   As I celebrate Thanksgiving, I am reminded of the many things I am thankful.   A loving wife, a roof over my head, food on the table, a good job, and many wonderful friends and family.   It’s funny how the one thing I tended to forget to be thankful, is the one thing I took for granted…good health.   In my association with the National MS Society, I have met many wonderful people who live with his d...

Making a Difference - Eradicate MS

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I try to host a health related post each week in The Locker. I like to share my experiences in the hopes of helping someone else. I've decided to make a little turn and have a guest host for the next few weeks. My friend Brian is a beast. He cycles more miles in a year than I probably drive in my car. He has a passion for health, and shares an equal passion to eradicate MS. Please be kind to Brian and give him a warm welcome. Hugs-   My name is Brian Jones.   I am an avid cyclist riding to rid the world of Multiple Sclerosis.   A sobering stat I learned while attending the National MS Leadership conference in Ft. Worth, TX.   More than 50% of MS patients will develop a progressive form of the disease, which can lead to diminished motor functions robbing the patient of the ability to walk, or even hold utensils to eat.   While there are FDA approved modifying drugs to treat relapsing forms of MS, there are still no treatments for...

My Mind is Going in So Many Directions!

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10/22/2014 I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Thank you for listening, periodically, I will have a new installment chronicling my journey- SOMEWHAT STARTING OVER I stopped and thought about the number of doctors I’ve seen since January 2013. As close as I can get to the numbers include: 3 Rheumatologists, 1 cardiologist, 1 vascular doc, 1 Ob/GYN, 3 neurologists, 1 oncologist, 1 gastroenterologist, 1 immunologist/allergy doc, 1 hematologist, one pain management doc, 3 orthopedists, one spine specialist, and three ER visits. I’ve given at least 200 vials of blood, taken 100 xrays, 3 CT scans, 1 MRI, and several urine tests. I’m in a serious relationship with BC/BS. I will say, and I almost hesitate to go out loud with it, but, I think I might be on the right track. Finally. You see, other than all the problem...

Don't Put Me in Charge of Money - UGH!

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Good morning!   I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Initially, a rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.   In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chron...

Turn It OFF! Tinnitus is More Than a Funny Word

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Good morning!  I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.  In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chronicli...

Rat or Ant and a Tattoo??? - Just Out of My Grasp

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Good morning!  I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.  In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chronicli...

It's Like Thunder...LIGHTNING...in my veins??

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Good morning!  I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.  In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chronicli...

Ass, Grass, or Cash....Nobody Sneezes For Free...

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Good morning!  I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.  In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chronicli...

Hemorrhoid...Another Word for Singing the Blues, or Alicia Keys

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Good morning!  I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.  In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chronicl...