Author Davee Jones

Hello everyone... Living with autoimmune disease is a challenge.  I have RA and Sjogrens. The maddening part is sometimes the day brings a new challenge I didn't expect. Take Saturday for example, my body went into full-on itching powder craziness. I have a high allergy level to trees, weeds, grass, some pet danders, mold, well...you get the picture. Because the same processes that attack allergens also wreaks havoc with the auto-immune system. I also have neuropathy and a loss of sensation. Which I realize is an odd combination when I have the horrible itching, but, my skin lacks sensation. Huh? The itching is like an inside out hives, imagine deep under the skin all of a sudden, a thousand chiggers invaded. You try and try scratching to get to the source. but, you can't. Well, I sat in a tub of epsom salt and warm water trying to soothe achy tired muscles and joints. Then, I began scratching the insatiable itch. Here's the result, and I didn't know this w...

Good morning!   I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Initially, a rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.   In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chron...

Good morning!   I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Initially, a rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.   In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chron...

Good morning!   I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.   In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chroni...

Hello Fellow Fathomers!!   I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.   In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installmen...

nah, this isn't surgery, it's just my lower back tattoo of a snowflake, my first tat! 11/21/2013 Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Degenerative Disc Disease I’ve had chronic back pain and problems for several years. In fact, former orthopedic doctors and even my physical therapists said my chronic shin splints and foot problems could be relate...

10/31/2013 Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … RAWR – BDSM and Chronic Illness…Really? Yea, Really There comes a time in most everyone’s life they evaluate their level of excitement, rating their existence on a scale from benign to buck-wild. For myself, I have several good stories that could make me blush, but, I’m proud to own them. Most of the good ...

Lupus Foundation of America 11/07/2013 Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Ugh, drank 4 beers on a Saturday night over the course of several hours. I know better than that, but, was having such a fun time with friends and family. The axe returned fiercely between my eyes about 11:30pm. It didn’t leave until sometime the next afternoon. But, the lupus flare ...

10/31/2013 Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Aquagenic Pruitis Huh? A few posts ago I talked about this horrific sunburn itch that wreaked havoc with my body for a few days. I thought nothing could top that incredibly debilitating sensation. Until this past week…when I developed this mind ripping itch from taking a shower. What? Am I allergic to wat...

10/24/2013 Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Although most of you do not know me personally, I will share something with you that you can accept of your own personal volition against the strength of my word: I have a high pain tolerance.  A regular momma grizzly.  I also have a low complaint tolerance. Therefore, friends, I could be in pa...

10/17/2013 Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … The third and fourth types of lupus I’ll explain together, as the first is usually not a permanent condition and neonatal lupus is so rare. Drug-induced Lupus Erythematosus Drug-induced lupus is a lupus-like disease caused by certain prescription drugs. The symptoms of drug-induced lupus are similar to thos...

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. I also have Sjogrens Syndrome.  Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Have any of you ever seen the movie Me, Myself, and Irene? This Jim Carrey/Renee Zellweger comedy movie had me laughing with the many off color, obscene, and adult humor jabs zinging throughout the film. Jim’s classic over the top theatrics extend from succinct verbal delivery to...