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Showing posts with the label #brainfog

Now, Within My Grasp RA and Sjogrens

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1/15/2014 I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Thank you for listening, periodically, I will have a new installment chronicling my journey- A DIAGNOSIS A LONG TIME IN THE WORKS Hello, Fellow Fathomers, I appreciate your kindness, inspiration, and support. As many of you know, I was initially diagnosed with SLE, systemic lupus, almost two years ago. After that, a specialist further tested, and revealed no signs of lupus. Another doctor believed I had fibromyalgia and Sjogrens Syndrome. Now after failed medications, not getting better, developing migraines, gaining almost 40 pounds, peripheral neuropathy, change medications, new medications…it’s a lot folks. But! I finally have conclusive blood results. I have Rheumatoid Arthritis and Sjogrens. I don’t know much about RA, I know the autoimmune disease, Sjogr...

Depression Fecking Sucks, Not Just Hurts

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I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Thank you for listening, periodically, I will have a new installment chronicling my journey- DEPRESSION CAN BE PAINFUL Although this time of year brings a warm glow to the core of most folks, we have a subset of people struggling to even wake up on Christmas Day. Depression/Anxiety/Bi-Polar/Fibromyalgia/MS/Sjogrens/Lupus/too many to list… Some seek help, some give up, some learn to live with it. It's not an easy life, but, it's one worth living. Which is the hardest part of all to remember, especially when you're in physical and mental pain. I had some of that pain yesterday.... I made the horrible mistake of miscalculating my Lyrica prescription  before it ran out. Taking the last pill on Monday morning, I called the script in to my amazing Kroger pharmacy. I arrived a...

Tuesday Tales are Stark Today....guess who's talking

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Happy Fall Tuesday Tales... Today, I return to my current WIP, a Game of Inches, for my Fantasy Leagues series. This week we write to the word prompt stark. I just can't tell you who's talking! It gives too much away. Book One of the Fantasy Leagues is now available. You can get a hint from there. First 25% free for download! Amazon Link     Smashwords Link "She is a stark reminder of what my life could have been. Sharlyn can't die, she's barely had a chance to live.” She paused, her body stiffened and she looked down. "Maybe she might even want a chance to get to know me."  "I'm sorry Sharlyn is going through this. I never thought about wanting children. I've always been too busy. Sometimes I think an extension of me would be more of a curse than a blessing I'd put on a child." "You'd be a wonderful mother, with your gifts, adventurous nature, and huge heart. I've witnessed it. Your dogged ...

My Mind is Going in So Many Directions!

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10/22/2014 I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Thank you for listening, periodically, I will have a new installment chronicling my journey- SOMEWHAT STARTING OVER I stopped and thought about the number of doctors I’ve seen since January 2013. As close as I can get to the numbers include: 3 Rheumatologists, 1 cardiologist, 1 vascular doc, 1 Ob/GYN, 3 neurologists, 1 oncologist, 1 gastroenterologist, 1 immunologist/allergy doc, 1 hematologist, one pain management doc, 3 orthopedists, one spine specialist, and three ER visits. I’ve given at least 200 vials of blood, taken 100 xrays, 3 CT scans, 1 MRI, and several urine tests. I’m in a serious relationship with BC/BS. I will say, and I almost hesitate to go out loud with it, but, I think I might be on the right track. Finally. You see, other than all the problem...

Don't Put Me in Charge of Money - UGH!

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Good morning!   I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Initially, a rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.   In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chron...