Author Davee Jones

Hello everyone... Living with autoimmune disease is a challenge.  I have RA and Sjogrens. The maddening part is sometimes the day brings a new challenge I didn't expect. Take Saturday for example, my body went into full-on itching powder craziness. I have a high allergy level to trees, weeds, grass, some pet danders, mold, well...you get the picture. Because the same processes that attack allergens also wreaks havoc with the auto-immune system. I also have neuropathy and a loss of sensation. Which I realize is an odd combination when I have the horrible itching, but, my skin lacks sensation. Huh? The itching is like an inside out hives, imagine deep under the skin all of a sudden, a thousand chiggers invaded. You try and try scratching to get to the source. but, you can't. Well, I sat in a tub of epsom salt and warm water trying to soothe achy tired muscles and joints. Then, I began scratching the insatiable itch. Here's the result, and I didn't know this w...

10/22/2014 I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Thank you for listening, periodically, I will have a new installment chronicling my journey- SOMEWHAT STARTING OVER I stopped and thought about the number of doctors I’ve seen since January 2013. As close as I can get to the numbers include: 3 Rheumatologists, 1 cardiologist, 1 vascular doc, 1 Ob/GYN, 3 neurologists, 1 oncologist, 1 gastroenterologist, 1 immunologist/allergy doc, 1 hematologist, one pain management doc, 3 orthopedists, one spine specialist, and three ER visits. I’ve given at least 200 vials of blood, taken 100 xrays, 3 CT scans, 1 MRI, and several urine tests. I’m in a serious relationship with BC/BS. I will say, and I almost hesitate to go out loud with it, but, I think I might be on the right track. Finally. You see, other than all the problem...

Good morning!  I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.  In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chronicli...

Good morning!  I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.  In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chronicli...

Good morning!  I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.  In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chronicli...

Good afternoon!   I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.   In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, physical and mental symptoms, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Today has been a struggle to stay awake, a...

http://store.secretcravingspublishing.com/index.php?main_page=book_info&products_id=241 Fibromyalgia - Mayo Clinic Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. On June 19, 2013, my rheumatologist told me the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. But, after second opinions and many more doctor visits, my neurologist believes it is actually Fibromyalgia. At any rate, no autoimmune disease is a good diagnosis, but, to me, Fibromyalgia is a blessing compared to lupus. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anony...

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. My rheumatologist intially diagnosed me with SLE in June 2013, however, this may have been a misdiagnosis. So, the search for the truth continues, but, I may be close now. :)  Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Day Seven of Lyrica So, my neurologist considered the notion that my auto-immune reactions could be fibromyalgia. I can deal with that, but, first I need to admit a shameful notion: I used to believe fibromyalgia was a made-up disease. For th...

12/05/2013 Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. BRAKE HERE- I visited the University of Colorado, Denver November 13, 2013 for a second opinion. The incredible Dr. Susan Boackle University of Colorado Rheumatology agreed to see me as a new patient. She evaluated all my medical records to date and worked me into her schedule. She took a 2 hour comprehensive history with me, ordered urine tests, x-rays, and also blood tests. The phlebotomist drew 19 vials of blood for all the tests. I had juice and cookies before they let me stand up, they took almost as much blood as a donation for blood drive. I waited almost impatiently for the week to be up and my results. I wanted to know if the medication I was taking was appropriate for what was going ...

nah, this isn't surgery, it's just my lower back tattoo of a snowflake, my first tat! 11/21/2013 Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Degenerative Disc Disease I’ve had chronic back pain and problems for several years. In fact, former orthopedic doctors and even my physical therapists said my chronic shin splints and foot problems could be relate...

Ahoy Fellow Fathomers, it's Friday and I'm flashing!  I return to my first recurring blog contribution, the Friday Flash Fiction. A group of writers will write exactly 100 words, no more no less, to a picture prompt. After you read my contribution, please read what the other writers have to say, the links follow. Happy Friday! “Tomorrow? I thought you had another day?” Andrew dropped the menu into his lap. “Well, tomorrow night, I have a nine o’clock flight, so, technically, I have a full day, rather, we have a full day.” Bea patted his exposed knee peeking from underneath a sheet. “It’s going so fast, and we slept most of today away.” A sullen Andrew scratched his chin. “Let’s eat, shower together, and make plans for our volcano excursion tomorrow. It’ll be fun.” “I guess…” “Please keep a good mood, we are having such a nice time, better than I imagined. Let’s keep it light.” Please visit the other flashers for their interpretation of this lovely p...

10/31/2013 Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Aquagenic Pruitis Huh? A few posts ago I talked about this horrific sunburn itch that wreaked havoc with my body for a few days. I thought nothing could top that incredibly debilitating sensation. Until this past week…when I developed this mind ripping itch from taking a shower. What? Am I allergic to wat...