Author Davee Jones

10/22/2014 I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Thank you for listening, periodically, I will have a new installment chronicling my journey- SOMEWHAT STARTING OVER I stopped and thought about the number of doctors I’ve seen since January 2013. As close as I can get to the numbers include: 3 Rheumatologists, 1 cardiologist, 1 vascular doc, 1 Ob/GYN, 3 neurologists, 1 oncologist, 1 gastroenterologist, 1 immunologist/allergy doc, 1 hematologist, one pain management doc, 3 orthopedists, one spine specialist, and three ER visits. I’ve given at least 200 vials of blood, taken 100 xrays, 3 CT scans, 1 MRI, and several urine tests. I’m in a serious relationship with BC/BS. I will say, and I almost hesitate to go out loud with it, but, I think I might be on the right track. Finally. You see, other than all the problem...

Good morning!   I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost three years. Initially, a rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.   In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category. Thank you for listening, each week I will have a new installment chron...