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Showing posts with the label lupus

Just Out of My Grasp - My Personal Journey with SLE

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … This autoimmune disease that takes on several forms and can affect any part of the body.   I found the following information from the Lupus Foundation of America- Lupus.Org The four main types include: Systemic Lupus Erythematosus Cutaneous Lupus Erythematosus Drug-induced Lupus Erythematosus Neonatal Lupus ...

Just Out of My Grasp - My Personal Journey with SLE

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … The second type of lupus is: Cutaneous Lupus Erythematosus “Cutaneous refers to the skin, and this form of lupus is limited to the skin. Although there are many types of rashes and lesions (sores) caused by cutaneous lupus, the most common rash is raised, scaly and red, but not itchy. It is commonly known as a discoid ...

Just Out of My Grasp - Sjogren's Is More Than a European Name

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Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. I also have Sjogrens Syndrome.  Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Have any of you ever seen the movie Me, Myself, and Irene? This Jim Carrey/Renee Zellweger comedy movie had me laughing with the many off color, obscene, and adult humor jabs zinging throughout the film. Jim’s classic over the top theatrics extend from succinct verbal delivery to...

Just Out of My Grasp - My Personal Journey with SLE

  Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Of course I read all the paperwork and prescription information the rheumy (the cute nickname for rheumatologist) gives to me. The usual glutton for punishment I am, I burn up the computer keys in searches for more details. I need to know more about lupus and the various problems associated with the disease. Everything I...

Just Out of My Grasp- My Personal Journey with SLE

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … “You are in the early stages of menopause, and your testosterone levels are a bit low”, my good ole OB/GYN told me. “We have a hormone pellet therapy that you might benefit from.” GOODY! An answer! Raise the hormonal levels, gain energy and LOSE weight. I’m on the road to back to normal. Which at 43 is important, because ...

Just Out of My Grasp - My Personal Journey with SLE

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … I’m working out like crazy and keep gaining weight. If anything I feel bloated. Gah, this seems to have started Labor Day 2010. I remember eating Oreo cookies, hot dogs, and hot cocoa while camping and figured it would do me in. I gained about five pounds that I could never shed. Five pounds, pushaw you might say. Wel...

Just Out of My Grasp - My Personal Journey with SLE

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today …   I ran an outdoor race and as I finished, I truly thought I was having a heart attack. I became dizzy, extremely nauseous, my face got red as a beet, my chest felt like three elephants were sitting on it, I started non-stop coughing- I sounded like an adult seal. It became harder and harder to breathe and I tried sipp...

Just Out of My Grasp - My Personal Journey with SLE

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … Training this year, 2012, for the July triathlon in Idaho took more out of me than the previous years’ training. I lacked energy and strength from 2011, and I began to dread my workout sessions. Dread seems like such a strong word. But, that’s what I felt. I slowed up on the intensity, I dropped the two a days. I did ...

Just Out of My Grasp - My Personal Journey with SLE

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … My first Olympic distance triathlon-July 2011, was not an Iron Man, but, definitely an impressive agenda. The swim 1.5K in the Snake River, a 40K bike ride through potato fields and a small town, ending with a 10K run across dirt roads and more potato fields. Was I ready? The day approached, I drank more water than ...

Just Out of My Grasp - My Personal Journey with SLE

Just Out of My Grasp Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today … 2011--I haven’t been able to peel vegetables or tough skinned fruits for a few years now. I attribute it to early onset arthritis, which seems to be genetically laced through my family. Far more than an inconvenience, I used it as an excuse to get the kids to help me when making complex salads, cooking...

Just Out of My Grasp - My Personal Journey with SLE

Just Out of My Grasp Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire. Hugs for today …   In 2008 I began running as a part of my regular fitness routine. I had worked out for several years, but, decided to add 5K races to my challenge. I finished my first 5K in around 46 minutes, not fast, but, I finished. Stubbornly, I began training even harder. After about one year of running ...

Just Out of My Grasp - My Personal Journey with SLE

Just Out of my Grasp Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE. Ironically, a year or so ago, one of my best friends had a co-worker, Mel, who died as a result of complications from lupus. I kept thinking Mel was in her sixties, (still not “old” by any stretch), but, I in fact found out Mel died at age 44. Heavy heart. Mel suffered from so many health complications as she declined, she could barely handle a one hour lunch with her friends. Toward the end, it seemed to me that her death was a blessing of sorts. However, that was well before I found out I had lupus too. Stolen years. I have a life to live, I have plans. So, the question began, “Is this the best I’m gonna feel for the rest of my life?” Despair. Thank you for listening, ea...