Fibromyalgia is Very Real and I’m Living Proof

Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. My rheumatologist intially diagnosed me with SLE in June 2013, however, this may have been a misdiagnosis. So, the search for the truth continues, but, I may be close now. :) 
Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire.
Hugs for today …
Day Seven of Lyrica
So, my neurologist considered the notion that my auto-immune reactions could be fibromyalgia. I can deal with that, but, first I need to admit a shameful notion: I used to believe fibromyalgia was a made-up disease. For that, I apologize for everyone who suffers with this disease. It attacked my muscles head to toe and my Central Nervous System. The neuropathy is the worst and the brain fog and the muscle swelling, the mind bending headaches and the fatigue…I could go on and on. Yes, fibromyalgia is very real and I’m living proof.
So, let’s stop the Gabapentin (Neurontin), I already stopped the Plaquenil (more on that later), and now added Lyrica. A mysterious medication that could cost a fortune and carries a laundry list of possible side effects. Such as a feeling of euphoria or being “high”.
High?

Lyrica by Pfizer

Did someone say euphoric? I am NOT euphoric, I’m the predictable skeptical sourpuss of the bunch. Come to me when you want brutal truth. The only thing that makes me cry are singing the national anthem at sporting events, the movies A League of Their Own, Radio, and The Blind Side- (notice the sports theme), and seeing my children in the spotlight.
But, daily living, nah, I stay away from warm fuzzies. BUT **
Wow, I started Lyrica and immediately felt this high sensation, but, it morphed into a gentle happiness. Yes, a gentle happiness…a satisfaction, while not euphoric, mentally better than I’ve felt in months- possibly years. And, the physical pain? Dissipated.
I’ve read the side effects, but, it was worth the risk. I’ve not experienced the weight gain or swelling- my body already did those things. Now, I feel less swollen, when before it felt like my muscles were in a big wad. Now, I feel more flexible, less pain, and more energy. I did two miles on the treadmill yesterday in a brisk walk and even jogged at the end! YAY ME!
I will honestly say it’s a relief my neurologist is considering fibromyalgia instead of lupus. Yes, I will always have an auto-immune disorder, my Sjogrens markers prove all the dryness is not my imagination. But, it’s not fatal, as lupus can be. And for that I’m truly blessed and thankful.
Let’s hope this diagnosis is correct and I’m truly on the road to better health and managing these CNS and muscle pain. So, officially making the change on my blog from SLE to fibromyalgia. But, still hope to provide information helpful to anyone fighting an auto-immune or other chronic illness.
Hugs for today!

put some spark in your holiday with the novella to melt the snow
a little naughty goes a long way...


Comments

morgan said…
Here's a thought. Do you have pain in your joints? I was reading that it is often the result to consuming foods you're intolerant too such as wheat and milk. I feel much better when I don't eat these.
December 19, 2013 at 11:04 AM
Davee Jones said…
Hi Morgan, Yes, you are right. I'm going to check into sugars and candida overload. I don't have much pain in my joints, it's all muscular and in Central Nervous System. :)
December 22, 2013 at 11:18 AM
Post a Comment

Popular posts from this blog

Demise on Top of a Mountain...Blue Ink-Tuesday Tales

Image
Ahoy Fellow Fathomers! Happy Tuesday and time for another edition of Tuesday Tales. This week I return to my current demonic, paranormal thriller, Blue Ink: The Skin Stalker for our journey to the top...I present-  " mountain ". "The Skin Stalker reached his destination, Echo Mountain .   He willed his evil connection to the underworld to transport him and his sacrifice, Hannah, to the top.   He held her loosely in his arms, as if her virtue burned his vile leathery skin.   Her head hung gracelessly backward toward the ground. The wind rushed through her long hair, blowing it around her face and across her delicate features- now relaxed in the throes of death.   The end of mortal Hannah happened on the top of Echo Mountain. The Skin Stalker roared viciously as Hannah took a final breath and released it noiselessly.   Yet, in death, she smiled, confusing the demon monster known as Skin Stalker.   Her body no longer a heavy weight, it felt light and almost angel
Read more

Easter Blog Hop!!!

Image
Hop on over to win some great prizes!  SO MANY CHANCES TO VISIT SAUCY POSTS AND WIN SUCCULENT GIFTS. click here----  BLOG HOP!! must comment on this post to be eligible to win a hot off the press PDF of Finless!!
Read more

Tuesday Tales and Shades of Gray

Image
Ahoy Fellow Fathomers! It's time for Tuesday Tales. A group of writers gather together and give our interpretation of a specific word prompt each week. This week we share the prompt "gray".  You never know what you might encounter when you get inside our minds.  This will be an excerpt f ro m my brand new yet-to-be-named WIP. Enjoy!~ “I very recently found out my father had at least one affair, probably more.” She nodded her head, prodding me forward. Obviously, I hadn’t said anything out of line yet. “I don’t really think mom and dad loved each other very long after they got married. They had separate beds, which later evolved into separate beds in separate rooms. He had at least one child from his skirting around.” “Only one? I can’t imagine how his insatiable appetite for strange yielded only one kiddo.” “Wow, you really have my father pegged. How long did you have his number?”
Read more