Hello Fellow Fathomers!! I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.
In April 2014 I visited yet another rheumatologist who I hoped would be familiar with autoimmune disorders. Following an extensive intake during my initial appointment, I found a place where the doctor also listened to me. Based upon my blood work, the doctor believes I have Sjogren’s Syndrome. She also made the diagnosis of Fibromyalgia and pre-lupus. I’ve never heard of pre-lupus, but, hopefully it stays in the “pre” category.
Thank you for listening, each week I will have a new installment chronicling my journey- Which is now more frustrating than ever. I test positive for ANAs in my blood, but, the lupus tests are negative. There are several varieties of autoimmune disorders, with different caveats and health variations. It’s so frustrating because I’ve not yet found a doctor to say YES, Eureka! We know what’s wrong.
So, is autoimmune a One Size Fits All?
Someone recently asked me if I could take Humira for my autoimmune disorder. He has Rheumatoid Arthritis/Psoriatic Arthritis which is an autoimmune disease. He has such relief and success with Humira, he thought it could help me.
But, these diseases have unique traits and affect the body distinctively. Therefore, not all medicines will work.