Just Out of My Grasp - My Personal Journey with SLE
Just Out of My Grasp
2011--I haven’t been able to peel vegetables or tough skinned fruits for a few years now. I attribute it to early onset arthritis, which seems to be genetically laced through my family. Far more than an inconvenience, I used it as an excuse to get the kids to help me when making complex salads, cooking potatoes, peeling jicama, you know, the good stuff.
Ahoy Fellow Fathomers, I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I found out on June 19, 2013 the reason for many of my ongoing health problems is because I have systemic lupus, also known as SLE.
Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via finlessbook at gmail dot com. I will respect your privacy and maintain your anonymity, if you so desire.
Hugs for today …
A visit to an orthopedic doctor who specializes in hand and wrist disorders. I got an ergonomic keyboard and mouse.
Maybe this is carpal tunnel from typing for almost seventeen years.
A couple of visits to a hand therapist who helps with physical therapy of the wrist and fingers. No real numbness, the classic signs of carpal tunnel and the x-rays reveal nothing. She gave me some exercises to perform, and like the heat, it helps at the time I’m doing it.
Time for more naproxen and learning to live with it.
It sucks getting older.
Still have not answers and this is becoming far more frustrating than helpful. I’ve now visited four different orthopedic doctors for various aches, pains, and limitations.
I thought working out and lifting weights was supposed to help the body. Why do I feel like a 1970’s Buick? Always breaking down and groaning with most strenuous motion.
I need an answer.
Comments
Constant pain fatigue and the roller-coaster of feeling not-too-bad, getting things done and then falling apart and watching everything around me go unfinished and to pot is too much.
And no one understands;they don't understand how hard and how fast you can crash, how it is hard to make plans.How sometimes you can push yourself and keep going but even if that is possible, you'll pay for it later. And they don't want to hear it. THEY have had an ache or short term pain.THEY get tired. They treat yo like you are dying and when you bounce back a bit, they treat yo like a hypochondriac , someone who has control over how they feel. I imagine you have experienced all this.
Sorry,I just let go there, but I imagine that you understand.
I congratulate you on your accomplishments.I know that many simply give up and give in to the pain and other symptoms.
I wish you the best in all things.